Welcome to the Sneddon's Foundation
~ Healing through the Flow of Infor
Sneddon's Syndrome . . .
Many Sneddon's patients also suffer day-to-day battles with dizziness,
severe head or eye pain, high blood pressure, extreme fatigue, exercise intolerance, unusual muscle spasms, or tremors. For all Sneddon's
patients there are worries about the possibility of stroke and memory problems that sometimes develop into early onset dementia.
Recent publications make it clear that Sneddon's can impact not only the brain, but other areas of the body as well, particularly the heart and kidneys. Many researchers argue now for an understanding of Sneddon's as "systemic" rather than focused only on the brain.
While these physical difficulties can be overwhelming, difficulties with the medical community also pose challenges.
First, most Sneddon's patients suffer from recurrent TIA's,
small strokes that are generally impossible to detect with
medical tests. As a result, Sneddon's patients are sometimes dismissed
with diagnoses of "stress" or depression, while the severity of every episode and the reality of its threat cannot, for the patient, be minimized or ignored.
Second, Sneddon's patients who've been diagnosed with the
wrong disease (very often with Vasculitis) carry the double burden
of untreated illness and the potentially disabling side effects
of inappropriate medication.
receive delayed treatment as doctors struggle to accept the
possibility of stroke in younger patients or the need for
continued preventative measures.
Most Sneddon's patients respond well to appropriate treatment. Many go on to lead essentially normal lives - but only if their doctors are familiar with current research on both diagnosis and management.
In response to these challenges, the
Foundation was formed in May 2008. Together we can
change the cli
difficult disease.